The 1040 Window

Aaron’s appointment with Dr. Paquette went well. The blood labs look good with counts coming up. Several drugs have been dropped or reduced. Even his pain pills have been reduced a bit (to an amount that would put most of us into a coma.) We’re all hoping this will reduce Aaron’s nausea and he can start eating. He looks gaunt, but has better color since starting his multivitamin. Vitamins have been discouraged until recently because of possible interaction with some of his drugs. I sure feel better knowing he’s getting at least the baseline nutrients. He’s only eating about a cup of food a day, but none of his docs want him on IV nutrition. I suppose as long as he is increasing his intake a little each day they’re not worried. Getting his digestive system working is part of the program.

The shingles are improving and his low-grade fevers are gone. Praise God!

Aaron has hair! His eyelashes, eyebrows and beard came in first, now his whole head has a five-o’clock-shadow. We were told that the amount of radiation he received could cause permanent baldness but the Burke hairy-gene is prevailing!

Life in a hotel room with three adults, two kids, a hepa filter, medical and home school supplies, an IV stand, wheel chair, art materials, fridge, microwave, toys, a set of bunk cots, and more could be a nightmare, but we’re doing fine, grateful for such a great facility.

Thanks for all your prayers as continue on this 100-day march.

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