Day +82 (by Natalie)
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Aaron had another weekly doctor appointment. We were pleased to be able to report to the doctor that Aaron had a better week with eating overall but especially on Sunday. It seems that reducing the medication last week has started improving his nausea. Also, the reduction in medication last week seems to have improved Aaron’s kidney function. For awhile now, Aaron’s kidney has been getting mildly damaged from the medications. This is the first time in a long time that his kidney function has been close to normal. Dr. Paquette responded with glee when he read the labs today. He seemed pleased by all of the numbers. Dr. Paquette called off the scope (that Aaron was going to have done to look for the source of nausea) because Aaron improved some this week. Aaron had some strong pain when the doctor pushed on his abdomen which is about the only thing of concern that arose during the appointment. Again, Dr. Paquette doesn’t know what that pain is but he doesn’t believe it is graft versus host disease. Aaron lost more weight during the week even though he seems to be doing better–he now weighs 119.6 pounds.
Dr. Paquette is going to be on vacation next week and said that Aaron could skip his weekly appointment next week–he doesn’t need to schedule an appointment with another doctor. I’ve started praying that Dr. Paquette will have a relaxing, safe and blessed vacation. We are so appreciative of his care and consider him to be a blessing from God. God chose just the right doctor for Aaron. We have met all of the other oncologists and Dr. Paquette is the most caring, helpful, encouraging, wise and trustworthy physician of the whole bunch. He gives of his own time without complaining and is always quick to respond to our questions. Praise God for using this man in His healing of my husband! The next time Aaron will go for an appointment, unless he is having some sort of problem, will be on Day +96. That’s exciting to think about!
Some of you have asked about the significance of Day +100. It dosen’t mean anything concrete really. The first 100 days post-transplant are very critical. There are a lot of rules that have to be followed for the patient’s safety, blood counts are all over the place and the need for many medications is high. After day +100, rules are allowed to be relaxed a bit (although we probably won’t relax too much–I’m super cautious!), blood counts don’t fluctuate so much and medications are reduced a lot.
Thank you so much for your love and support. We are looking forward to when we can be back home in Ojai. Please, pray that God brings that about soon and give Him glory for the marvelous things He has done through Aaron’s sickness.
For who can know the Lord’s thoughts? Who knows enough to give Him advice? And who has given Him so much that He needs to pay it back? For everything comes from Him and exists by His power and is intended for His glory. All glory to Him forever! Romans 11:34-6
July 3rd, 2007 at 6:49 pm
Praise the Lord for good news and for Aaron feeling better! I am so glad you posted the pics, they are adorable. We are looking forward to having you all back in Ojai. Your pew is waiting for you!
July 7th, 2007 at 9:32 am
Yeah!!!! Praise the Lord! Miss you and can’t wait till you are home. Emily wants to make smores with Michaela and Chris!
Praying for Dr. P. He sounds like an awesome guy.
July 7th, 2007 at 11:01 am
what’s up aaron? Got your hair back, I see. I haven’t been on here for a couple of months, so to see you now in comparison to your last few pictures is astounding. It makes me wonder if I would be that strong if my time came to deal with something like this? Well, I’ll let you get back to your wii. I read your kid’s message from awhile back. pretty funny. Keep it up. miles
July 8th, 2007 at 9:09 am
Love and prayers from Iowa! I check on you everyday. Wishing the best for your family. Tell Annalyse Happy Birthday!
July 8th, 2007 at 8:23 pm
Praying for you all and thinking of you continually. I haven’t heard anything lately so am praying that things are looking up. I praise God for all of the people that you are touching. We are in the Kingdom of God, in His almighty Hands. I love you guys. I pray for you all to have HIS strength in your weakness and to see His word being lived out, as you are so clearly doing. We are all learning how to follow God and to depend on HIm through you.
If we could keep the kids on a weekend for you please let me know. We would love to help anyway that we can.
Martha
July 9th, 2007 at 7:59 pm
Wow, you guys are almost through already! Praise God for Dr. Paquette and less meds and more food!! :)